Jon had a good night, no fever and slept soundly. He is feeling good today, off to work, as ornery and obnoxious as ever.
PET scan Friday, results Tuesday the 26th
Wednesday, June 20, 2007
Tuesday, June 19, 2007
Good News/Bad News
The bad news is Jon had another reaction to his chemo. Similar to last time with fever and chills but much more controlled with the supervision of the doctors and nurses at SCTWC. I am monitoring his temperature tonight which has returned to normal. They are never sure if it is an allergic reaction or an infection so as a precaution they gave him an IV antibiotic and a prescription of levoquin. He is doing well and just a little loopy from the drugs. If anything happens tonight I will take him to Auburn General Hopsital, otherwise we will check in with SCTWC in the morning.
The good news is Dr. Chue agreed to ending his intravenous chemo today and has ordered the PET scan. We are to call the hospital to schedule it tomorrow (I'm hoping for a Thursday appointment) and we will see Dr. Chue next Tuesday for the results. We are all feeling extremely optimistic about the PET scan results. I should have some definite news by early next week.
Keep all those prayers and positive thoughts coming!
The good news is Dr. Chue agreed to ending his intravenous chemo today and has ordered the PET scan. We are to call the hospital to schedule it tomorrow (I'm hoping for a Thursday appointment) and we will see Dr. Chue next Tuesday for the results. We are all feeling extremely optimistic about the PET scan results. I should have some definite news by early next week.
Keep all those prayers and positive thoughts coming!
Saturday, June 16, 2007
Sleeping Beauty
It's been a long week for Jon...he went to bed Thursday afternoon and finally managed to make it to the couch in time for Levi's birthday Friday night. We had planned on dinner at Tokyo Steakhouse but opted for pizza from The Rock and a birthday celebration at our house. He thought he'd make it to Maelies first birthday party today but used up all of his energy eating breakfast :(. We are shooting for church in the morning and then having everyone over to barbq for Father's Day. Elizabeth will be home tomorrow, Staci and Octavio on Wednesday.
I am grateful he is only tired and not sick. The PET scan is being scheduled this week. I keep hoping we show up at chemo on Tuesday and they say "24 chemos are plenty,he's too worn out, lets just do the scans and call it good." Either way, its all within our grasp...even if he sleeps until the 26th.
Thanks to everyone for you continued prayers and support!
I am grateful he is only tired and not sick. The PET scan is being scheduled this week. I keep hoping we show up at chemo on Tuesday and they say "24 chemos are plenty,he's too worn out, lets just do the scans and call it good." Either way, its all within our grasp...even if he sleeps until the 26th.
Thanks to everyone for you continued prayers and support!
Wednesday, June 13, 2007
TWO WEEKS TO GO
Jon received a fairly good spanking from the physicians assistant at chemo yesterday. He does promise to do the abdominal x-rays and take Zantac twice a day for the next week (he's had terrible heartburn all week). I think he just likes all of this female attention so he acts up on purpose!
We have a little more information on the Interferon. Apparently most of the patients have little or no side effects and it does and excellent job of boosting the immune system. After the PET scan Jon can expect to be on Tarceva for one week to one month and Interferon for 3 months (providing the tumors have continued to shrink as expected). At the end of the three months they will rescan him to insure that the cancer has not grown or returned. If it has he will need more intravenous chemo, if not he will continue on the Interferon for a year. They feel that it is realistic for Jon to expect to guide in Alaska this October, however we will have to await all of these results.
Keep up the prayers and positive thoughts. Although he is tired and his stomach hurts, he continues to amaze all the docs with his progress
We have a little more information on the Interferon. Apparently most of the patients have little or no side effects and it does and excellent job of boosting the immune system. After the PET scan Jon can expect to be on Tarceva for one week to one month and Interferon for 3 months (providing the tumors have continued to shrink as expected). At the end of the three months they will rescan him to insure that the cancer has not grown or returned. If it has he will need more intravenous chemo, if not he will continue on the Interferon for a year. They feel that it is realistic for Jon to expect to guide in Alaska this October, however we will have to await all of these results.
Keep up the prayers and positive thoughts. Although he is tired and his stomach hurts, he continues to amaze all the docs with his progress
Thursday, June 7, 2007
The Old Jon Is Back
True to form, Jon felt so much better today he cancelled his abdominal x-ray.
What can I say??? The man's going to live or die on his terms. I am confident that his stubbornness will keep him alive for a very long time.
He assures me that he will have it done immediately should his symptoms return. I will just let him explain it all to the Chue Master next Tuesday.
What can I say??? The man's going to live or die on his terms. I am confident that his stubbornness will keep him alive for a very long time.
He assures me that he will have it done immediately should his symptoms return. I will just let him explain it all to the Chue Master next Tuesday.
Wednesday, June 6, 2007
Things are Looking Up
Jon's doing pretty well today. He has some difficulty sleeping because of the steroids so he's a little tired. He and Howard (Father-in-law #1) worked at one of his foreclosure houses together this morning and then met me for lunch. They are quite a colorful pair!
THREE MORE CHEMOS TO GO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
We've researched a bit more on the Interferon and found that just like the chemo, Dr Chue prescribes it at a lower dose with an increased frequency. Although it makes you tired it's tolerated much better that way. Aaron (the other pancreatic cancer cure) is still on it after a year and is riding the Seattle to Portand Bike ride next month. He has also returned to work and is living what appears to be an cancer-free, normal life.
Please send extra prayers and positive thoughts tomorrow. Thursday is always Jons worst day after chemo and he could use the extra boost. He is also having the abdominal x-ray series in the afternoon and we are expecting a positive result.
THREE MORE CHEMOS TO GO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
We've researched a bit more on the Interferon and found that just like the chemo, Dr Chue prescribes it at a lower dose with an increased frequency. Although it makes you tired it's tolerated much better that way. Aaron (the other pancreatic cancer cure) is still on it after a year and is riding the Seattle to Portand Bike ride next month. He has also returned to work and is living what appears to be an cancer-free, normal life.
Please send extra prayers and positive thoughts tomorrow. Thursday is always Jons worst day after chemo and he could use the extra boost. He is also having the abdominal x-ray series in the afternoon and we are expecting a positive result.
Tuesday, June 5, 2007
I Knew He Was Full of S#%!
This has probably been Jon's worst week since he got out of the hospital. He went to bed on Thursday and stayed there until Monday morning. He has been exhausted and experiencing abdominal pain which has caused some concern. Today he is feeling much better after taking a special "Maryjane Voodoo Cure" designed to clean-out the liver, gall bladder, and colon.
We are back at chemotherapy today. All of the doctors have come in to evaluate Jon and have concluded that his abdominal pain is some type of gastrointestinal irritation or blockage and not tumor related. Just to be sure he is having an ultrasound and x-ray this week. If any problems persist Dr. Chue will move up the PET scan/CT scan. His red count and white counts are excellent but his alkaline phosphotase is slightly elevated (also GI related). He has no pain today and his energy level is back to normal on the "cancer scale". We are looking forward to a better week!
We are back at chemotherapy today. All of the doctors have come in to evaluate Jon and have concluded that his abdominal pain is some type of gastrointestinal irritation or blockage and not tumor related. Just to be sure he is having an ultrasound and x-ray this week. If any problems persist Dr. Chue will move up the PET scan/CT scan. His red count and white counts are excellent but his alkaline phosphotase is slightly elevated (also GI related). He has no pain today and his energy level is back to normal on the "cancer scale". We are looking forward to a better week!
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