Sunday, November 9, 2008

I sometimes just have to laugh at the irony of the cancer world...I think I have mentioned in my previous blogs that I have taken a temporary leave from being Jon's personal secretary, assistant and cancer advocate. This, of course, is only while he is feeling well and able to do these things for himself; it gives me a few moments of a normal life and an opportunity to take care of myself and catch up on my work and other responsibilities.

Jon did get his PET/MRI scheduled for the 19th, however I am disappointed that it took so long and that Dr. Chue will not be available to view the results. We did, however, meet with Dr. Chue last month and plot a course for the potential eventualities. So while Jon scheduled his radiological studies at the UW he queried them about the Photodynamic Therapy to treat his lungs. They came back (weeks later) saying that the procedure was not offered at the University of Washington or the Seattle Cancer Care Alliance. Much like every other specialist we have seen they did not offer any alternatives for treatments or location. SCTWC told us that their Tulsa location does the procedure but not in Seattle. I did find a place in St Louis that did it but wasn't impressed with the idea of traveling for treatment. So tonight, I refined my search and, low and behold, the treatment is offered at two major hospitals here in Seattle (Swedish and Virginia Mason) and a Cancer Center in Portland, Oregon. Geez...do you think maybe someone might know that if they work in the cancer field every day??? Now the challenge will be our usual, convincing the doctors that Jon is a worthy candidate for the procedure. Time to start sending his weight-lifting pictures again!

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