Jon remains tired most of the time. He probably sleeps about 18 hours a day and is able to get up and go out every other day or so. On Friday he had another endoscope to check on the esophageal varices. There were four additional ones that were repaired before they could bleed. Dan took him to the appointment and he slept all evening and into the night. His ascites is better, especially in his legs and feet, but he still has some abdominal swelling and generalized body pain.

I talk to Dr. Lin's office every day and am jumping through all of the hoops to get Jon scheduled for the next scan.

Today Levi took Jon to the Duck Club to retrieve his supplies. It was good they had some time together. Kelsey and I went to a Student Legislation Day at Bill Gates former high school. Kelsey is a member of the Sumner Student Congress and acted as a lobbyist for this event. It has been extremely difficult to maintain any kind of normal life these days and I was grateful for the time to chaperon this event. Kelsey has been an incredible help for the past several months, doing everything from cleaning up Jon's vomit to cleaning up the dinner dishes. On top of that he's managed to keep a 3.5 in the International Baccalaureate curriculum, raise his pigs for FFA and basically be my right hand person. It is certainly not a normal teenage existence and I know it is difficult and frustrating for him, especially when Jon never seems to be aware or appreciative all the work he does yet always notices if he leaves on a light or has him music just a smidge too loud. I sometimes feel that this is so unfair to all of us but in the end it has made each of us stronger in our own way.

The plan for the week is to continue to support Jon's liver with acupuncture, energy work, herbal supplements and medication. I am expecting the next scan to be scheduled this week and chemotherapy to start again in March.