Thursday, March 19, 2009

Jon continues with his IV antibiotics. The doctors have finally convinced him that he should not be driving and I have family lined up for every day but this Saturday (Levi can take him to Seattle but Jon has this idea that he wants to go to Ellensburg to pick up some tires after his treatment which wouldn't work for Levi and his family. Any takers??)

I've been concerned about Jon's mental status as he has recently become somewhat confused and exhibited more irrational judgement and behavior. I called Dr. Lin yesterday and described the symptoms so we agreed on running another calcium level and talking more to Jon about his pain management and the driving issue. I was able to accompany him today to his IV treatment and was impressed with the way the doctors were able to communicate with him. They did find that his calcium levels were beginning to rise which led to the confusion he exhibited while I was returning from Florida. This time they caught it early and gave him the medication to bind the calcium and lower the blood levels. He seemed like his normal cancer-self today. It's weird how fast he can go from rational to irrational.

We have also been discussing pain management. The doctors would like Jon to take 2 long-acting oxycodone on a 12 hour schedule and use the short-acting in between. Jon is convinced that if he would do this he would end up taking too much oxycodone and still wants to take the minimum amount of medication. Unfortunately, what ends up happening is that he takes too little long-acting and too much short-acting which doesn't seem to control his pain very well and leads to episodes of over-medicating with the short-acting. The nurses, Ericka and I have been trying to explain to him that if he did take the meds on schedule he would end up taking much less medication but he has been resistant to the theory. Today the doctor explained the exact same thing and he seemed to take it to heart. I don't know if it was hearing it 27 times or just hearing it from a man.

Jon will stay on the week on/week off xyloda and we will continue to see Dr. Lin every two weeks through May at which time Jon will be rescanned to measure his progress and determine future treatment.

I'm really tired...

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