Although Jon is home from the hospital he continues to feel crummy. He is weak, tired and his stomach, legs and feet remain extremely swollen. Cindy took him to see one of our "Witch Doctors", Dr. Meeker, this morning and I took him for acupuncture this afternoon. He did perk up after all that and managed to eat a little bit. His stomach is so huge that he can barely get any food in there but at least he's not bleeding anymore. He is napping right now before dinner.

I've been on the telephone all day scheduling his follow up appointments. He is scheduled for chemotherapy next Tuesday but we are hoping to cancel it in lieu of the Y90 mapping and follow-up procedure. I spoke to Dr. Goswami's assistant who wanted to schedule an appointment for Jon to see Dr. G but I told him we don't need an appointment, we need the procedure. Dr. Reilly also called today and told me there is a shunt/stent procedure where they could potentially drain the fluid in Jon's abdomen and direct it back into his bloodstream. I spoke to Dr. Goswami's assistant about that and he said Dr. G. can make the appropriate referral. Jon would like to try to rid himself of the ascites without any invasive procedures but we haven't had much luck thus far. I also scheduled him to see Dr. Linn at UW for a consultation on the 29th. Jon did get some significant relief from acupuncture today so we scheduled another one for Friday morning. Photodymanic Therapy is on the backburner because it is untested on pancreatic cancer and would be a long road to get the procedure performed or approved. It is difficult to keep all these balls in the air at the same time so that Jon may get what he needs when he needs it.

On a positive note, Kelsey and I were up at 5 am to drive to Seattle to watch President Obama's Inauguration with the Seattle crowd on the big screen at the Paramount Theater. It was an inspiring morning and I am thrilled that my son has such an interest in our country. When Aretha Franklin started to sing My Country Tis of Thee Kelsey stood up alone in the crowd and put his hand over his heart...the rest of the crowd then joined him. It's nice to feel hope and optimism wherever we can find it.